News

Cancer patients want to support research with clinical data

Cancer patients show a high willingness to make their clinical data available for research purposes, according to a new study. Patients demand high data security, best use of data, and information about research results obtained from clinical data.

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The federated EGA becomes a reality

Research institutes from five European countries - including GHGA and the DKFZ for Germany - have committed to improving the way researchers discover and access sensitive human data across national borders to enable more efficient health research.

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Response to recommendations on digitization in health research

NFDI4Health, NFDI4Microbiota and GHGA welcome the recommendations of the German Science and Humanities Council on digitisation and data use for health research and care, and drafted a joint response (German only).

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GHGA opens dialogue with patients

In early July, GHGA met with patients to understand their perspective on GHGA governance, particularly in terms of genomic data sharing. Based on these discussions a concrete strategy for patient participation will be developed.

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GHGA Team Retreat

The last week in July, the GHGA Team gathered in Lobbach to spend three days full of strategic planning and team building activities.

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Major bioinformatic workflow releases with GHGA contribution

The GHGA workflow workstream was involved in the release of bioinformatic workflows (sarek 3.0, nanoseq 3.0, and DROP 1.2), collaborating with the nf-core community and the Gagneur lab.

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GHGA Training Webinar Series started

First GHGA webinar was successfully held - it included a Beginners Guide to DNA and Sequencing and an introduction to bioinformatic workflows.

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GHGA Modular Consent Toolkit now available

GHGA’s first whitepaper contains and explains different consent modules to be integrated into existing consent documents. These will enable data sharing for secondary research via GHGA.

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Hackathon for FAIR data management teaching materials

GHGA joins the Training Community launched by Elixir-Converge and de.NBI, to create teaching materials on FAIR data management and data stewardship.

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GHGA runs the NCT run 2022

In July, we run. GHGA members took part in the NCT run again this year.

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GHGA presents at the International Workshop on Science Gateways

The "14th International Workshop on Science Gateways” brought together researchers from different backgrounds to discuss problems and solutions in the fields related to science gateways.

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Cooperation Agreement with EGA Signed

GHGA reached an important milestone in signing a cooperation agreement to become a national node in the federated European Genome-Phenome Archive. This will make data in GHGA finadable and interoperable beyond German borders.

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