GHGA Symposium 2023

As part of the GHGA Annual Meeting 2023, GHGA will hold a public symposium on 04 October 2023 in Heidelberg with the title ‘Data Infrastructures for Genomic Research in Europe’.

The event will have two sessions, one on ‘National Infrastructure Solutions’, and one on ‘Trust Building and Patient Engagement in Genome Research’, including a panel discussion. Presenters include members of GHGA but also renowned experts in the field of biomedical research, who will contribute their experiences with setting up other European or international initiatives.

Attendance is free but we ask for registration. Registration link

The event will be held in English and is hybrid. Please indicate in your registration if you would like to participate in-person or virtual (Link will be provided after registration).

Date and Time:       04 October, 14:30-18:30
                BioQuant (Raum SR41), Im Neuenheimer Feld 267, Heidelberg (or virtual)

Programme: Download here

Session 1:  National Infrastructure Solutions - Status and Perspective

  • Welcome Note GHGA
    Oliver Kohlbacher - University of Tübingen, Germany
  • Individual-level, longitudinal data linkable to genome sequencing data in the Danish precision medicine infrastructure
    Søren Brunak - University of Copenhagen, Denmark
  • Genomics England's clinical and research infrastructure for genomic medicine
    Augusto Rendon - Genomics England, UK
  • Building the German Human Genome-Phenome Archive (GHGA) - The Journey so Far
    GHGA Board of Directors / TBC

Session 2:  Trust Building and Patient Engagement in Genome Research

  • Introduction and Overview GHGA ELSI Activities
    Eva Winkler - University Hospital Heidelberg, Germany
    Fruzsina Molnár-Gábor - University of Heidelberg, Germany
  • The social contract and trust in large-scale genomics initiatives. A British-French perspective
    Ruth Horn - University of Oxford, UK / University of Augsburg, Germany
  • Responsible Genomic Data Sharing: Activating the Right to Science
    Bartha Maria Knoppers - McGill University, Canada
  • Establishing Adaptive Governance and Patient Involvement in GHGA - Lessons from the PaGODA study
    Eric Apondo - University Hospital Heidelberg, Germany