We are building a secure national omics data infrastructure, enabling the use of human genome data for research purposes while preventing data misuse.
Omics data have the potental to revolutionise health care. Here we show how GHGA is part of this process.
Alongside our technical infrastructure, GHGA has developed a robust and appropriate legal and data protection structure.
The Max Delbrück Center (MDC) Berlin is now part of the GHGA Data Hub Cooperation Contract. Together with the BIH and Charité, the MDC can start to develop a GHGA Data Hub for storing and sharing of human omics data.
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While praising GHGA and its team effort to establish a national database, the SAB stressed the value of the infrastructure and its need for a long term perspective. A request to funders rather than GHGA.
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Gene therapies have the potential to help people suffering from hereditary genetic diseases. Doctor Immanuel Seitz (University Clinic Tuebingen) talks with us about Luxturna, as an example and explains how we make viruses work for us and help patients.
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13 December 2023
Angela Abicht & Christian Gebhard (Medical Genetics Center Munich) will talk on 13 December 2023, 16:00 CET.
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21 February 2024
Ruth Horn (Augsburg University) will talk on 21 February 2024, 16:00 CET.
Learn moreGHGA is tightly embedded and connected to national and international infrastructures and initiatives. It will be operated as a German national node of the federated European Genome-Phenome Archive (EGA).
GHGA is funded as part of the National Research Data Infrastructure (NFDI e.V.) via the DFG.
With 46 Participants from 21 institutions, GHGA is organised in data hubs across Germany combining leading institutions in genomic medicine, major omics data producers (including four DFG Sequencing Centers) and HPC centers committed to provide scalable infrastructure.
To ensure smooth working, eight workstreams were formed.
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"GHGA wants to enable research with omics data in an ethically and legally responsible way so that knowledge reaches patient care faster."
"GHGA will go beyond data archive - the goal is to establish a comprehensive genome data infrastructure and research platform that will also act as a bridge between basic research and translation."
"GHGA will be a key infrastructure for the archiving, and sharing, of sensitive human gen(omics) research data requiring appropriate protection, in Germany and internationally. Go data sharing to advance research for the common good!"
"GHGA is building a national archive for human genome data. It balances the need for data privacy with the need for access to this data through secure access mechanisms thus enabling FAIR and transparent use of the data."
