With increasing numbers of sequenced human genomes in research and clinical settings, the need for a secure and standardized archive for omics data is growing. GHGA strives to provide a national infrastructure as well as an ethico-legal framework that balances FAIR omics data usage and data protection needs.
Research institutes from five European countries - including GHGA and the DKFZ for Germany - have committed to improving the way researchers discover and access sensitive human data across national borders to enable more efficient health research.
In this episode we have a closer look at the neanderthals and their genetic heritage. We want to talk about who the neanderthals were, why they're gone and how their genes affect us even today!
NFDI4Health, NFDI4Microbiota and GHGA welcome the recommendations of the German Science and Humanities Council on digitisation and data use for health research and care, and drafted a joint response (German only).
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07 Oct 2022
This webinar aims to inform students, researchers and clinicians, but also people working with medical databases (bioinformaticians, data stewards and data protection officers) on the importance and the challenges around research consent.
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10 - 11 Oct 2022
Save the Date - we are pleased to announce that the next internal GHGA Annual Meeting will take place 10-11 October 2022, in Tübingen.
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24 October 2022
Sergi Beltran Agulló (CNAG-CRG) will talk about “Pan-European data sharing in Solve-RD contributes to diagnose Rare Diseases: can we make an even bigger impact?” on the 24. October 2022, 16:00 CET.
Learn moreGHGA is funded as part of the National Research Data Infrastructure (NFDI e.V.) via the DFG.
With 46 Participants from 21 institutions, GHGA is organised in six data hubs across Germany combining leading institutions in genomic medicine, major omics data producers (including four DFG Sequencing Centers) and HPC centers committed to provide scalable infrastructure.
To ensure smooth working, seven workstreams were formed.
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"GHGA wants to enable research with omics data in an ethically and legally responsible way so that knowledge reaches patient care faster."
"GHGA will go beyond data archive - the goal is to establish a comprehensive genome data infrastructure and research platform that will also act as a bridge between basic research and translation."
"GHGA will be a key infrastructure for the archiving, and sharing, of sensitive human gen(omics) research data requiring appropriate protection, in Germany and internationally. Go data sharing to advance research for the common good!"
"GHGA is building a national archive for human genome data. It balances the need for data privacy with the need for access to this data through secure access mechanisms thus enabling FAIR and transparent use of the data."
