We are building a secure national omics data infrastructure, enabling the use of human genome data for research purposes while preventing data misuse.
The genome data collected within the MV GenomSeq is archived in GHGA and, with the patient's consent, made available for research.
Omics data have the potential to revolutionise health care. Here we show how GHGA is an integral part of this process.
GHGA has developed a robust and appropriate legal and data protection structure.
GHGA has officially joined the Global Alliance for Genomics and Health (GA4GH) National Initiatives Forum (NIF), a global community of genomics initiatives dedicated to advancing human health through collaboration and knowledge exchange.
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In a substantial development, we are proud to announce the launch of the next stage of the GHGA Data Portal, allowing controlled data access directly via GHGA for the first time.
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The Federal Institute for Drugs and Medical Devices (BfArM) has approved six GHGA Data Hubs as Genome Data Centres to handle sensitive genome data from patients within the Model Project Genome Sequencing.
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18 September 2024
Zornitza Stark and Sebastian Lunke from the Victorian Clinical Genetics Services will talk at the GHGA lecture series ("Advances in Data-Driven Biomedicine") on September 18, 2024.
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26 September 2024
Join us for a webinar on metadata - Why are metadata important for research and data analysis? Which genomic data portals are out there and what do we need from them? How do we make our research data FAIR?
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15 October 2024
Guests are welcome! GHGA will hold a public symposium on 15 October 2024 in Heidelberg, as part of the GHGA Annual Meeting 2024.
Learn moreGHGA is tightly embedded and connected to national and international infrastructures and initiatives. It will be operated as a German national node of the federated European Genome-Phenome Archive (EGA).
GHGA is funded as part of the National Research Data Infrastructure (NFDI e.V.) via the DFG.
With 46 Participants from 21 institutions, GHGA is organised in data hubs across Germany combining leading institutions in genomic medicine, major omics data producers (including four DFG Sequencing Centers) and HPC centers committed to provide scalable infrastructure.
To ensure smooth working, eight workstreams were formed.
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"GHGA wants to enable research with omics data in an ethically and legally responsible way so that knowledge reaches patient care faster."
"GHGA will go beyond data archive - the goal is to establish a comprehensive genome data infrastructure and research platform that will also act as a bridge between basic research and translation."
"GHGA will be a key infrastructure for the archiving, and sharing, of sensitive human gen(omics) research data requiring appropriate protection, in Germany and internationally. Go data sharing to advance research for the common good!"
"GHGA is building a national archive for human genome data. It balances the need for data privacy with the need for access to this data through secure access mechanisms thus enabling FAIR and transparent use of the data."
