We are building a secure national omics data infrastructure, enabling the use of human genome data for research purposes while preventing data misuse.
The monthly virtual GHGA Lecture Series diving into fascinating world of data-driven medicine and their ethical, legal and social implications.
In this episode we want to take a closer look at the importance of informed consent in science and how a valid consent form should look like.
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In a statement, scientists call for a shift in the way data from medical routine care are handled and for a legal basis to be created for standard data use without consent, but with an opt-out solution.
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GHGA participated at the SCOG conference ‘Single Cell Omics in Clinical Applications’ with a GHGA satellite event, engaging with the single cell community for the first time.
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24 January 2023
New to single cell research? Looking for an introduction into scRNA sequencing and analysis workflows? Then look no more, we have a webinar for you.
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15 February 2023
Peter Robinson (The Jackson Laboratory) will talk about the "The Global Alliance for Genomics and Health (GA4GH) Phenopacket schema" on the 15 February 2023, 16:00 CET.
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15 March 2023
Christoph Schickhardt (NTC) will talk about "a nationally standardized broad consent for long-term secondary use of health data and biosamples" on the 15 March 2023, 16:00 CET.
Learn moreGHGA is tightly embedded and connected to national and international infrastructures and initiatives. It will be operated as a German national node of the federated European Genome-Phenome Archive (EGA).
GHGA is funded as part of the National Research Data Infrastructure (NFDI e.V.) via the DFG.
With 46 Participants from 21 institutions, GHGA is organised in data hubs across Germany combining leading institutions in genomic medicine, major omics data producers (including four DFG Sequencing Centers) and HPC centers committed to provide scalable infrastructure.
To ensure smooth working, eight workstreams were formed.
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"GHGA wants to enable research with omics data in an ethically and legally responsible way so that knowledge reaches patient care faster."
"GHGA will go beyond data archive - the goal is to establish a comprehensive genome data infrastructure and research platform that will also act as a bridge between basic research and translation."
"GHGA will be a key infrastructure for the archiving, and sharing, of sensitive human gen(omics) research data requiring appropriate protection, in Germany and internationally. Go data sharing to advance research for the common good!"
"GHGA is building a national archive for human genome data. It balances the need for data privacy with the need for access to this data through secure access mechanisms thus enabling FAIR and transparent use of the data."
