In a statement, scientists call for a shift in the way data from medical routine care are handled and for a legal basis to be created for standard data use without consent, but with an opt-out solution.
GHGA participated at the SCOG conference ‘Single Cell Omics in Clinical Applications’ with a GHGA satellite event, engaging with the single cell community for the first time.
GHGA is pleased to announce its participation in the newly formed GDI project. Within the ELIXIR-coordinated project, GHGA will enable secure data sharing of human omics data from Germany with the GDI network.
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21 November 2022
Jean-Pierre Hubaux (Swiss Federal Institute of Technology Lausanne) will talk about “GDPR-Compliant Federated Learning on Medical Data” on the 21. November 2022, 16:00 CET.Learn more
24 November 2022
EOSC National Tripartite Event In its role as the mandated organization for Germany in the EOSC Association, the NFDI Association is hosting an EOSC National Tripartite Event on November 24, 2022 from 10:00-13:00 (virtual).Learn more
13 December 2022
Metadata - everyone has heard the term, but what does it actually mean? Why are metadata important for research and data analysis? What is the GHGA metadatamodell? Answers to these questions and more will be given in this webinar.Learn more
GHGA is funded as part of the National Research Data Infrastructure (NFDI e.V.) via the DFG.
With 46 Participants from 21 institutions, GHGA is organised in six data hubs across Germany combining leading institutions in genomic medicine, major omics data producers (including four DFG Sequencing Centers) and HPC centers committed to provide scalable infrastructure.
To ensure smooth working, seven workstreams were formed.
"GHGA wants to enable research with omics data in an ethically and legally responsible way so that knowledge reaches patient care faster."
"GHGA will go beyond data archive - the goal is to establish a comprehensive genome data infrastructure and research platform that will also act as a bridge between basic research and translation."
"GHGA will be a key infrastructure for the archiving, and sharing, of sensitive human gen(omics) research data requiring appropriate protection, in Germany and internationally. Go data sharing to advance research for the common good!"
"GHGA is building a national archive for human genome data. It balances the need for data privacy with the need for access to this data through secure access mechanisms thus enabling FAIR and transparent use of the data."