With increasing numbers of sequenced human genomes in research and clinical settings, the need for a secure and standardized archive for omics data is growing. GHGA strives to provide a national infrastructure as well as an ethico-legal framework that balances FAIR omics data usage and data protection needs.
The life sciences NFDI consortia NFDI4Health, NFDI4Microbiota and GHGA welcome the recommendations of the German Science and Humanities Council (Wissenschaftsrat) on digitization and data use for health research and care and have drafted a joint response (German only).
In early July, GHGA met with patients to understand their perspective on GHGA governance, particularly in terms of genomic data sharing. Based on these discussions a concrete strategy for patient participation will be developed.
The last week in July, the GHGA Team gathered in Lobbach to spend three days full of strategic planning and team building activities.
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14-16 Sep 2022
GHGA is co-organising EuroBioC2022. EuroBioC is the European Conference for Bioconductor, an open-source community and a non-profit organization that develops some of the most widely used data analysis tools in bioinformatics.
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26 September 2022
William Rayner (Helmholtz Munich) will talk about “Genomic federated data analyses” on the 26. September 2022, 16:00 CET.
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10 - 11 Oct 2022
Save the Date - we are pleased to announce that the next internal GHGA Annual Meeting will take place 10-11 October 2022, in Tübingen.
Learn moreGHGA is funded as part of the National Research Data Infrastructure (NFDI e.V.) via the DFG.
With 46 Participants from 21 institutions, GHGA is organised in six data hubs across Germany combining leading institutions in genomic medicine, major omics data producers (including four DFG Sequencing Centers) and HPC centers committed to provide scalable infrastructure.
To ensure smooth working, seven workstreams were formed.
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"GHGA wants to enable research with omics data in an ethically and legally responsible way so that knowledge reaches patient care faster."
"GHGA will go beyond data archive - the goal is to establish a comprehensive genome data infrastructure and research platform that will also act as a bridge between basic research and translation."
"GHGA will be a key infrastructure for the archiving, and sharing, of sensitive human gen(omics) research data requiring appropriate protection, in Germany and internationally. Go data sharing to advance research for the common good!"
"GHGA is building a national archive for human genome data. It balances the need for data privacy with the need for access to this data through secure access mechanisms thus enabling FAIR and transparent use of the data."
