GHGA organized a workshop at the GfH conference (german society for human genetics) on “Best practice examples for shared genome data usage”. The Workshop focused on the importance of Metadata and the new Metadata Catalog.
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In early March, GHGA continued its dialogue with patients on the implementation of effective patient participation in GHGA. The consensus-building meeting focused on a recruitment strategy for patient representatives and outreach objectives.
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What is a reference genome and what's it used for? In this episode we look at the limitations of the current reference genome (GRCH38) while looking at the possibilities of a pangenomic approach for more diversity in research.
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We are pleased to announce the launch of the first phase of GHGA: a public portal for the discovery of human omics study data from German research institutions.
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Visiting the Finnish federated EGA node, GHGA met with CSC members to establish further collaborations and to discuss similarities, differences, and common challenges.
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Bringing together experts in bioinformatic infrastructures, the 1st BioHackathon Germany saw exciting projects come to life. GHGA was excited to be part of the event.
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In a statement, scientists call for a shift in the way data from medical routine care are handled and for a legal basis to be created for standard data use without consent, but with an opt-out solution.
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GHGA participated at the SCOG conference ‘Single Cell Omics in Clinical Applications’ with a GHGA satellite event, engaging with the single cell community for the first time.
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GHGA is pleased to announce its participation in the newly formed GDI project. Within the ELIXIR-coordinated project, GHGA will enable secure data sharing of human omics data from Germany with the GDI network.
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ELSA Workshop "Anonymization and Data Trusteeship" in Berlin with participation of GHGA Director Prof Eva Winkler, who gave a presentation on 'Ethical Trust Concepts in Medicine and their Implications'.
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Sharing genomic data with third countries is not an easy task but very necessary for effectively advancing genomic research. Molnár-Gábor et al. explain, which supplementary measures could raise the data protection standard for international data transfers.
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The Marsilius Kolleg Seminar provided an interdisciplinary perspective on how legal and technical-biological aspects interact when deciding on data processing and data protection in the health context.
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