The life sciences NFDI consortia NFDI4Health, NFDI4Microbiota and GHGA welcome the recommendations of the German Science and Humanities Council (Wissenschaftsrat) on digitization and data use for health research and care and have drafted a joint response (German only).
In early July, GHGA met with patients to understand their perspective on GHGA governance, particularly in terms of genomic data sharing. Based on these discussions a concrete strategy for patient participation will be developed.
In this episode we want to take a closer look at how our genes influence our risk to develope breast cancer and what impact the Angelina-Jolie-effect had on genetic testing.
The GHGA workflow workstream was involved in the release of bioinformatic workflows (sarek 3.0, nanoseq 3.0, and DROP 1.2), collaborating with the nf-core community and the Gagneur lab.
GHGA’s first whitepaper contains and explains different consent modules to be integrated into existing consent documents. These will enable data sharing for secondary research via GHGA.
GHGA joins the Training Community launched by Elixir-Converge and de.NBI, to create teaching materials on FAIR data management and data stewardship.
The "14th International Workshop on Science Gateways” brought together researchers from different backgrounds to discuss problems and solutions in the fields related to science gateways.
GHGA reached an important milestone in signing a cooperation agreement to become a national node in the federated European Genome-Phenome Archive. This will make data in GHGA finadable and interoperable beyond German borders.
To further evaluate the needs of research groups generating human sequencing data with regards to storage, analysis and sharing of those data, GHGA launches a landscape survey.