GHGA Workshop at the GfH conference
GHGA participated at the GfH conference (German Society for Human Genetics) and organized a workshop titled “The German Human Genome-Phenome Archive (GHGA): Best practice examples for shared genome data usage” on March 17. The roughly 40 participants showed keen interest in the topic and the workshop led to exciting discussions.
Within the workshop we talked about what GHGA is and what the future plans are. We showed that human genome data and other omics data is essential for biomedical research and for the future development of medical practice. It is important to balance the need to protect personal data and to still offer an open and FAIR access to omics data for research. We highlighted different aspects of archiving such data within Germany. Four speakers presented various GHGA related topics:
- „The German Human Genome-Phenome Archive: What is it and how can I take part?“ – Dr. Jan Eufinger
- „Legal questions and answers in GHGA“ – Prof. Dr. Fruzsina Molnár-Gabor
- „GHGA - Sharing Data for Rare Disease Research” - Prof. Dr. Julien Gagneur and Prof. Dr. Stephan Ossowski
Thank you to all the participants for the lively discussion and to all speakers for their input! We are looking forward to continuing this conversation at the next GfH conference.