News

GHGA welcomes the new WHO policy for Genome Data Access, Use and Sharing and follows the call for comments in this community effort.

In a statement, scientists call for a shift in the way data from medical routine care are handled and for a legal basis to be created for standard data use without consent, but with an opt-out solution.

ELSA Workshop "Anonymization and Data Trusteeship" in Berlin with participation of GHGA Director Prof Eva Winkler, who gave a presentation on 'Ethical Trust Concepts in Medicine and their Implications'.

With a new App, GHGA aims to guide researchers when assessing original, pre-GDPR consent to see if it is sufficient to permit new data processing.

Cancer patients show a high willingness to make their clinical data available for research purposes, according to a new study. Patients demand high data security, best use of data, and information about research results obtained from clinical data.

GHGA’s first whitepaper contains and explains different consent modules to be integrated into existing consent documents. These will enable data sharing for secondary research via GHGA.

Within a participatory study, GHGA will hold deliberative democratic forums exploring the patients’ perspectives and which concrete roles patients could take within GHGA governance.

Congratulations to our GHGA co-spokesperson and legal expert Fruzsina Molnár-Gábor who was appointed as a new member of the European Group on Ethics in Science and New Technologies (EGE).