We are building a secure national omics data infrastructure, enabling the use of human genome data for research purposes while preventing data misuse.
The genome data collected within the MV GenomSeq is archived in GHGA and, with the patient's consent, made available for research.
Omics data have the potential to revolutionise health care. Here we show how GHGA is an integral part of this process.
GHGA has developed a robust and appropriate legal and data protection structure.
In a recent publication, the FAIR Workflows Working Group of the Workflow Community Initiative offers recommendations to assist researchers and developers in creating workflows that are easy to share, reusable, and adoptable across disciplines.
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In a substantial development, we are proud to announce the launch of the next stage of the GHGA Data Portal, allowing controlled data access directly via GHGA for the first time.
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The Federal Institute for Drugs and Medical Devices (BfArM) has approved six GHGA Data Hubs as Genome Data Centres to handle sensitive genome data from patients within the Model Project Genome Sequencing.
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15 October 2024
Guests are welcome! GHGA will hold a public symposium on 15 October 2024 in Heidelberg, as part of the GHGA Annual Meeting 2024.
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23 October 2024
Anthony Brookes from the University of Leicester will talk about "Research Asset Discovery in Large European Networks" at the GHGA lecture series ("Advances in Data-Driven Biomedicine") on October 23. 2024.
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14 November 2024
Discover the hidden history of genetic discrimination. Join us to learn about the implications for research and policy, and how we can work towards a more equitable future.
Learn moreGHGA is part of the NFDI e.V. and is funded by the DFG. We are closely integrated with both national and international infrastructures and initiatives, such as GDI, EGA, GA4GH, and the model project GenomSeq model project.
As a national initiative created by researchers for researchers, GHGA brings together expertise from over 20 leading institutions in genomic medicine, major omics data producers (including four DFG Sequencing Centres), and high-performance computing (HPC) centres. These institutions are dedicated to providing scalable infrastructure for genomic research.
Our infrastructure is managed in a federated manner and organised into data hubs located across Germany.
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"At GHGA, we enable data-driven research in the interest of patients and the public. For us, patient engagement is not a secondary process but an integral part of our mission."
"GHGA will go beyond data archive - the goal is to establish a comprehensive genome data infrastructure and research platform that will also act as a bridge between basic research and translation."
"GHGA will be a key infrastructure for the archiving, and sharing, of sensitive human gen(omics) research data requiring appropriate protection, in Germany and internationally. Go data sharing to advance research for the common good!”
"GHGA has been pivotal in driving national developments in genome medicine, operating core infrastructure for the MV GenomSeq project, and advancing the integration of genome research with clinical care in Germany."
"Using knowledge generating patient care with systemic multi-omics analyses in research projects can help develop new diagnoses for rare disease patients. To enable and simplify data sharing between researchers and facilitate such analyses, we have GHGA."
“We need a new approach for cancer therapy decision making! GHGA establishes the infrastructure to combine new omics approaches with longitudinal clinical data towards dynamic swarm intelligence based algorithms for advanced patient navigation.”
