News

First data transmission within the genomDE model project

First genome data successfully transferred to genome data centers operated by GHGA data hubs —marking a key step toward a secure, decentralised infrastructure for personalised diagnostics and research. (link to German press release by BfArM)

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New Podcast Episode: Optical Genome Mapping. With Barcode to Diagnosis?

Dr Kornelia Neveling talks about how OGM works and where it can make a crucial difference.

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ASSURED: Testing Underway for New Sensitive Data Training Modules

We are excited to announce that the new e-learning platform for ASSURED training is being tested by experts from the research community!

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Patient Involvement in Genomic Data Governance

GHGA’s PaGODA study, which explored how patients can be meaningfully involved in the governance of genomic data, has now been published in Public Health Genomics.

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What patient really want to know: results from the GHGA focus groups

How to talk in an accessible and emphatic way about the sharing of genetic data? GHGA consulted patients, relatives and interested persons - and gained valuable insights.

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GHGA Data Portal: Latest Updates Now Live (July 2025)

GHGA has released a new update to its Data Portal, introducing the ability to download metadata from the portal as part of our ongoing commitment to continuous enhancement.

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genomDE Symposium 2025: Data. Infrastructure. Impact.

The 4th genomDE Symposium united experts to explore the current progress and future of genomic medicine in Germany as well as data infrastructure, and collaborative innovation.

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What’s next for NFDI after 2028?

The German Science Council has released their evaluation on the NFDI. It recommends continued funding and structural adjustments to strengthen the data infrastructure with a focus on high-quality data services and streamlined governance.

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GWK Approves Continued Funding for GHGA with significant budget reductions

We are pleased to announce that the Joint Science Conference (GWK) has decided to continue funding GHGA, along with all nine consortia from the first NFDI funding round.

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GHGA Data Portal: Latest Updates Now Live (June 2025)

GHGA has released a new update to its Data Portal, bringing targeted improvements to user experience, backend systems, and developer workflows as part of our ongoing commitment to continuous enhancement.

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GHGA Now on re3data & FAIRsharing: Making Genomic Data More Discoverable

We are excited to announce that GHGA is now officially listed as a recognised data repository on re3data and FAIRsharing. An entry at DataCite is to follow soon.

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GHGA Data Portal: Latest Updates Now Live (April 2025)

GHGA has released a new updates to its Data Portal, featuring several improvements aimed at enhancing usability, performance, and long-term reliability.

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