News

The TU Dresden Data Hub is now operational, joining Heidelberg, Tübingen, and Berlin in GHGA’s federated network. Its first dataset is now accessible via the GHGA Data Portal.

“How can progress be achieved together?” At two events in September, GHGA discussed this question with patients and caregivers suffering from rare diseases and cancer. The consensus was that shared data forms the basis for innovation in care and research.

How does vitamin D work in our cells? What role does it play in bone health? And what does cod liver oil have to do with it? A conversation with Dr. Carlberg.

Strengthening its development into a robust, sustainable data infrastructure, GHGA is set to expand services, grow its community, and secure long-term integration within the German research system.

As Germany’s national node in the European Genomic Data Infrastructure (GDI) project, we have taken part in a successful proof-of-concept. The demonstration showed how large-scale genomic research can be carried out securely across Europe.

Join the new de.NBI & ELIXIR-DE and GHGA Knowledge Series "Empowering Research: Practical Bioinformatics and Data Management" starting in October 2025.

The Berlin Data Hub, jointly run by the MDC and the BIH at Charité, is operational after completing its first data submission. GHGA datasets are now hosted across three locations in Germany, all accessible via the GHGA Data Portal.

Solve-RD's collaborative “Solvathons” show how structured data reanalysis and joint interpretation can drive diagnosis and how GHGA tools help enable secure, scalable workflows.

First genome data successfully transferred to genome data centers operated by GHGA data hubs —marking a key step toward a secure, decentralised infrastructure for personalised diagnostics and research. (link to German press release by BfArM)

We are excited to announce that the new e-learning platform for ASSURED training is being tested by experts from the research community!

GHGA’s PaGODA study, which explored how patients can be meaningfully involved in the governance of genomic data, has now been published in Public Health Genomics.

How to talk in an accessible and emphatic way about the sharing of genetic data? GHGA consulted patients, relatives and interested persons - and gained valuable insights.