News

Sharing genomic data with third countries is not an easy task but very necessary for effectively advancing genomic research. Molnár-Gábor et al. explain, which supplementary measures could raise the data protection standard for international data transfers.

The Marsilius Kolleg Seminar provided an interdisciplinary perspective on how legal and technical-biological aspects interact when deciding on data processing and data protection in the health context.

Two years of GHGA, celebrated with two days full of discussions around achievements and the future direction of GHGA - bringing together the GHGA team and spokespersons for a hybrid event in Tübingen.

With a new App, GHGA aims to guide researchers when assessing original, pre-GDPR consent to see if it is sufficient to permit new data processing.

Cancer patients show a high willingness to make their clinical data available for research purposes, according to a new study. Patients demand high data security, best use of data, and information about research results obtained from clinical data.

Research institutes from five European countries - including GHGA and the DKFZ for Germany - have committed to improving the way researchers discover and access sensitive human data across national borders to enable more efficient health research.

NFDI4Health, NFDI4Microbiota and GHGA welcome the recommendations of the German Science and Humanities Council on digitisation and data use for health research and care, and drafted a joint response (German only).

In early July, GHGA met with patients to understand their perspective on GHGA governance, particularly in terms of genomic data sharing. Based on these discussions a concrete strategy for patient participation will be developed.

The last week in July, the GHGA Team gathered in Lobbach to spend three days full of strategic planning and team building activities.

The GHGA workflow workstream was involved in the release of bioinformatic workflows (sarek 3.0, nanoseq 3.0, and DROP 1.2), collaborating with the nf-core community and the Gagneur lab.

First GHGA webinar was successfully held - it included a Beginners Guide to DNA and Sequencing and an introduction to bioinformatic workflows.

GHGA’s first whitepaper contains and explains different consent modules to be integrated into existing consent documents. These will enable data sharing for secondary research via GHGA.