News

Online follow-up dialogue event on patient involvement in governance

In early March, GHGA continued its dialogue with patients on the implementation of effective patient participation in GHGA. The consensus-building meeting focused on a recruitment strategy for patient representatives and outreach objectives.

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Launching the GHGA Metadata Catalog

We are pleased to announce the launch of the first phase of GHGA: a public portal for the discovery of human omics study data from German research institutions.

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Strengthening European Ties

Visiting the Finnish federated EGA node, GHGA met with CSC members to establish further collaborations and to discuss similarities, differences, and common challenges.

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1st BioHackathon Germany with GHGA Contributions

Bringing together experts in bioinformatic infrastructures, the 1st BioHackathon Germany saw exciting projects come to life. GHGA was excited to be part of the event.

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Maximising potential: treatment data for research

In a statement, scientists call for a shift in the way data from medical routine care are handled and for a legal basis to be created for standard data use without consent, but with an opt-out solution.

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GHGA event at Single Cell Omics Germany conference

GHGA participated at the SCOG conference ‘Single Cell Omics in Clinical Applications’ with a GHGA satellite event, engaging with the single cell community for the first time.

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GHGA joins EU project to support integration of genomics into healthcare

GHGA is pleased to announce its participation in the newly formed GDI project. Within the ELIXIR-coordinated project, GHGA will enable secure data sharing of human omics data from Germany with the GDI network.

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NFDI ELSI Workshop with GHGA participation

ELSA Workshop "Anonymization and Data Trusteeship" in Berlin with participation of GHGA Director Prof Eva Winkler, who gave a presentation on 'Ethical Trust Concepts in Medicine and their Implications'.

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Bridging the European Data Sharing Divide in Genomic Science

Sharing genomic data with third countries is not an easy task but very necessary for effectively advancing genomic research. Molnár-Gábor et al. explain, which supplementary measures could raise the data protection standard for international data transfers.

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Decision-making regarding data processing and data protection in the medical context

The Marsilius Kolleg Seminar provided an interdisciplinary perspective on how legal and technical-biological aspects interact when deciding on data processing and data protection in the health context.

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GHGA Annual Meeting held in Tübingen

Two years of GHGA, celebrated with two days full of discussions around achievements and the future direction of GHGA - bringing together the GHGA team and spokespersons for a hybrid event in Tübingen.

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GHGA Legacy Consent Toolkit now available

With a new App, GHGA aims to guide researchers when assessing original, pre-GDPR consent to see if it is sufficient to permit new data processing.

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