GHGA draws its strength from bringing together experts in the fields of genomics and biomedical research, paired with expertise in legal and ethical challenges in health care as well as a talented team of IT experts. This is being made possible through contributions from the great number of institutions involved in GHGA, and most importantly through its team members.
To be able to steer the consortium towards our ambitious goals and coordinate all activities on various levels, several governing bodies were set in place.
The consortium is coordinated by a Board of Directors (BoD) consisting of three elected members and the Speaker. The Speaker, Porf. Oliver Stegle, or his deputy, Prof. Oliver Kohlbacher, represents GHGA in the NFDI Consortia Assembly and in the NFDI Directorate.
The Steering Committee consists of the co-spokespersons. They are responsible for driving the GHGA strategy and for ensuring the alignment and prioritisation of work across all task areas.
The General Assembly regularly brings together all co-spokespersons, participants, and GHGA team members. It serves as the central forum where the Board of Directors and Steering Committee present progress updates, and the full consortium collaboratively discusses and shapes the overall strategic direction.
GHGA as a whole is advised by a Scientific Advisory Board (SAB) consisting of internationally renowned scientists involved in research data infrastructures and international initiatives with direct relevance to GHGA. The SAB provides strategic input and supports international interactions with relevant infrastructures and initiatives.
Although GHGA’s mission is to develop an infrastructure to enable the use of (gen)omics data for research purposes, we greatly value input on all aspects of our platform by the people who make this possible by consenting to allow the use of their data. Therefore we engage patients and patient support groups in dedicated activities to gather their feedback and opinions on our activities.