News

Comparative law publication clarifies questions around harmonization under the GDPR concerning health data and genetic data.

Congratulations to our GHGA co-spokesperson and legal expert Fruzsina Molnár-Gábor who was appointed as a new member of the European Group on Ethics in Science and New Technologies (EGE).

In the run up to Christmas, GHGA introduced members of its team, GHGA participants and co-spokespersons as well as the GHGA Board of Directors in a twitter campaign.

In December 2021, we released version 0.4.0 of the GHGA Metadata Model, that contains key metadata information and is a solid foundation for further refinement of the GHGA metadata schema.

We are excited to announce the GHGA Lecture Series- 'Advances in Data-Driven Biomedicine' starting on Monday, November 22. These virtual lectures will be held monthly, on Mondays from 16:00 to 17:00 (CET).

The second issue of Cell Genomics focused on GA4GH and a landmark paper on secure, interoperable technical standards and policy frameworks, highlighting their relevance to key domains of research and clinical care.

Under the umbrella of the Berlin Science Week, the FOKUS and NFDI e.V. organized a virtual science slam for NFDI consortia to introduce themselves and their work around research data infrastructure to the general public.

One year after being funded, GHGA celebrated its first anniversary with a bunch of new firsts. The first GHGA Annual Meeting took place in a hybrid format from 26-28th of October.

We presented GHGA, its goals and plans for the future with a flash talk and poster during the virtual E:med 2021 Meeting.

Things got athletic in July. Ten members of the GHGA team took part in the 10th NCT Run - a charitable run against cancer! The virtual event took place over the span of three days from the 02-04 of July.

A new study demonstrates the feasibility and clinical value of whole-genome/exome sequencing and RNA sequencing in patients suffering from early onset or rare cancer types. 

The CoGDat is an initiative launched by researchers across Germany. GHGA contributes to the CoGDat effort both on a conceptual level in the data privacy domain as well as through the development of the data portal software DataMeta.