Posters, presentations and much more:

In our Zenodo Community  you will find numerous publications from the consortium.

Publications

2025

Yépez, V. A., Demidov, G., Ellwanger, K., Laurie, S., Luknárová, R., Joseph Maran, M. I., Hentrich, T., Sagath, L., van der Sanden, B., Astuti, G., Neveling, K., Batlle-Masó, L., Beijer, D., Brechtmann, F., Caballero-Oteyza, A., Dabad, M., Denommé-Pichon, A. S., Doornbos, C., Eddafir, Z., Estévez-Arias, B., … Graessner, H. (2025). The Solve-RD Solvathons as a pan-European interdisciplinary collaboration to diagnose patients with rare disease. Nature genetics, 10.1038/s41588-025-02290-3. Advance online publication. https://doi.org/10.1038/s41588-025-02290-3. See our news post about this publication here.

Apondo, E., Mehlis, K., Bruns, A., Schickhardt, C., Winkler, E., & Züger, A. (2025). Toward Patient Involvement and Representation in the Governance of Genomic Data Archives: Deliberative Forums with Patients in GermanyPublic health genomics28(1), 217–228. doi.org/10.1159/000546172. See our news post about this publication here.

D'Altri, T., Freeberg, M. A., Curwin, A. J., Alonso, A., Freitas, A. T., Capella-Gutierrez, S., Gadelha, L., Hagwall, A., Hovig, E., Kerry, G., Kirli, K., Kochel, K., Kohlbacher, O., Korbel, J. O., Leinonen, J., Marciniak, B., Oliveira, J. S., Petersen, K., Silva, M. J., Stegle, O., … Keane, T. M. (2025). The Federated European Genome-Phenome Archive as a global network for sharing human genomics data. Nature genetics, 57(3), 481–485. https://doi.org/10.1038/s41588-025-02101-9 

Wilkinson, S. R., Aloqalaa, M., Belhajjame, K., Crusoe, M. R., de Paula Kinoshita, B., Gadelha, L., Garijo, D., Gustafsson, O. J. R., Juty, N., Kanwal, S., Khan, F. Z., Köster, J., Peters-von Gehlen, K., Pouchard, L., Rannow, R. K., Soiland-Reyes, S., Soranzo, N., Sufi, S., Sun, Z., Vilne, B., … Goble, C. (2025). Applying the FAIR Principles to computational workflows. Scientific data, 12(1), 328. https://doi.org/10.1038/s41597-025-04451-9 

2024

Hanssen, F., Garcia, M. U., Folkersen, L., Pedersen, A. S., Lescai, F., Jodoin, S., Miller, E., Seybold, M., Wacker, O., Smith, N., Gabernet, G., & Nahnsen, S. (2024). Scalable and efficient DNA sequencing analysis on different compute infrastructures aiding variant discovery. NAR genomics and bioinformatics6(2), lqae031. https://doi.org/10.1093/nargab/lqae031.  See our news post about this publication here.

2023

Hanssen, F., Gabernet, G., Smith, N. H., Mertes, C., Neogi, A. G., Brandhoff, L., Ossowski, A., Altmueller, J., Becker, K., Petzold, A., Sturm, M., Stöcker, T., Sugirthan, S., Brand, F., Schmid, A., Buness, A., Probst, A.J., Motameny, S. & Köster, J. (2023). NCBench: providing an open, reproducible, transparent, adaptable, and continuous benchmark approach for DNA-sequencing-based variant calling. F1000Research12, 1125. https://doi.org/10.12688/f1000research.140344.1 See our news post about this publication here.

2022

Molnár-Gábor, F., Beauvais, M.J.S., Bernier, A., Jimenez, M.P.N., Recuero, M., Knoppers, B.M. (2022). Bridging the European Data Sharing Divide in Genomic ScienceJ Med Internet Res; 24(10):e37236. https://doi.org/10.2196/37236. See our news post about this publication here.

Molnár-Gábor, F., Kaldowski, L., Schenk, A. (2022). Alteinwilligungen im Forschungskontext. Zeitschrift für Datenschutz, 7/2022, 376-383. PDF. See our Legacy Consent Toolkit based on this publication here.

Porubsky, D., Höps., W, Ashraf, H., Hsieh, P., Rodriguez-Martin, B., Yilmaz, F., Ebler, J., Hallast, P., Maria Maggiolini, F.A., Harvey, W.T., Henning, B., Audano, P.A., Gordon, D.S., Ebert, P., Hasenfeld, P., Benito, E., Zhu, Q., Human Genome Structural Variation Consortium (HGSVC), Lee, C., Antonacci, F., Steinrücken, M., Beck, C.R., Sanders, A.D., Marschall, T., Eichler, E.E., Korbel, J.O. (2022). Recurrent inversion polymorphisms in humans associate with genetic instability and genomic disorders. Cell 185(11):1986-2005.e26. https://doi.org/10.1016/j.cell.2022.04.017 See our news post about this publication here.

Yépez, V.A., Gusic, M., Kopajtich, R., Mertes, C., Smith, N.H.,  [...] Meitinger, T., Julien Gagneur, J. & Prokisch, H. (2022). Clinical implementation of RNA sequencing for Mendelian disease diagnostics. Genome Med 14, 38. https://doi.org/10.1186/s13073-022-01019-9. See our news post about this publication here.

2021

Molnar-Gabor, F., Sellner, J., Pagil, S., Slokenberga, S., Tzortzatou, O., & Nyström, K. (2021). Harmonization after the GDPR? Divergences in the rules for genetic and health data sharing in four member states and ways to overcome them by EU measures: insights from Germany, Greece, Latvia and Sweden. Seminars in cancer biology. Academic Press. https://doi.org/10.1016/j.semcancer.2021.12.001. See our news post about this publication here.

Hallinan, D., Bernier, A., Cambon-Thomsen, A., Crawley, F.P., Dimitrova, D., Bauzer Medeiros, C., Nilsonne, G., Parker, S., Pickering, B., & Rennes, S. (2021). International transfers of personal data for health research following Schrems II: a problem in need of a solution. Eur J Hum Genet 29, 1502–1509. https://doi.org/10.1038/s41431-021-00893-y 

Molnár-Gábor, F., Kaldowski, L., Korbel, J. (2021). Verhaltenskodex für die Omics-Forschung. Zeitschrift für Datenschutz 6, 313-318. Link PDF